Sharing Your Information With Your Provider

Instructions about the various options you have for communicating your health status and outcomes, plus other information, with your doctor.

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Some people may be content simply to use MyHealthOutcomes to track their own health status without engaging their doctors and nurses, but the real value of generating scientific measures of how you are doing is when this information can feed back into the treatment decisions you and your providers are making.

We provider several different ways that you can communicate with your providers:

  • Online access
  • Notes
  • Printed reports

Online Access

The most complete way to engage your provider is to grant her online access to your data. We discuss at length how to do this here.


The next technique you can use is to record notes about how you’re doing, questions you’ve thought of, or anything else that’s important to you using the “My Notes” feature on the “My Outcomes” summary page. Click the “My Outcomes” menu item in the menu bar (which only shows when you’re logged into our site) to reach this summary page. You’ll see the “My Notes” section in the right hand column of the page:

Note that the introduction tells you whether you’ve set your report to include the notes or not when it prints. Click the Update printing setting" link to change the setting; this will take you to the “My Profile” editing page that we describe "here. When you change the setting there, the change will show up here.

To add a note, simply type whatever you want to report into the “Add a Note” field:

and then click the “Save” button. Your new note will show up in the “My Notes” section right below the form:

Note that each note is “stamped” with the date and the time when you saved it. (The time will reflect whatever timezone you set in your “My Profile” section — so that’s why it’s important to set your actual timezone.)

As these notes accumulate, they all display in reverse chronological order — the most recent ones will be at the top and the older ones will be below. All the notes that can’t fit within the visible area of the page will be in a scrollable area that automatically shows up when necessary.

Printed Reports

These reports are probably the most useful way to communicate with your doc — or at least will be so early on until docs are more interested in coming online themselves. At the top of your “My Outcomes” summary page, you will always see a link to a “printer-friendly version” of your summary. Clicking this link will take you to a compact summary of all your information that is designed to print with basic printers. Here is an example of such a report:

Note that in the upper portion of the report at the SAQ, KCCQ, and/or PAQ results. The report includes up to the last twelve results for each instrument — which ordinarily will cover the past year. The report flags any scale that has significant changes between the last result and the prior result — and the line graphs show clearly whether these changes represent an improvement or a worsening of your condition.

In the lower part of the report is whatever clinical information — medications, treatments, and diagnoses you’ve recorded. This also is where notes will print — if you’ve chosen to print them.

If you print this out and take it with you to your doctor appointments, they can include the report in their record if they want, or the doc can simply look over the information as the two of you talk.

Created: February 10, 2009 15:16; Last updated: February 10, 2009 15:16